Ella has cystic fibrosis (CF)—a life-threatening genetic disease that affects her lungs and digestive system. Keeping her healthy requires a grueling daily routine: over 30 pills, multiple inhaled medications, and hours of airway clearance therapy. It’s exhausting, but it’s what keeps her alive. And we will do whatever it takes to ensure her quality of life.
Ella’s journey wasn’t easy. She was misdiagnosed at birth and spent her first few months battling infection after infection. She endured more hospital stays, blood draws, and invasive procedures in infancy than many people face in a lifetime. Finally, at five months old, we got a diagnosis. It gave us clarity.
Supporting CF events and seeing the community come together taught me the power of collective action. Every dollar raised brings us closer to breakthroughs that change lives.
Giving back gives me purpose and perspective. It’s rewarding to know that my efforts can make a tangible difference for all CF'ers.
Meeting other families like ours which have been affected by CF and hearing their stories deeply inspired me. It reminds me that behind every statistic is a person, and that fuels my commitment to advocacy and fundraising.
Fast forward 6 years and we have attended many CF walks, climbs, functions, races, all in honor of Ella and the CF community. Having our friends and family, and even my company matching donations helps us feel like we are making a difference, even though sometimes we feel completely helpless. It really does take a village.
Ella’s journey wasn’t easy. She was misdiagnosed at birth and spent her first few months battling infection after infection. She endured more hospital stays, blood draws, and invasive procedures in infancy than many people face in a lifetime. Finally, at five months old, we got a diagnosis. It gave us clarity.
Supporting CF events and seeing the community come together taught me the power of collective action. Every dollar raised brings us closer to breakthroughs that change lives.
Giving back gives me purpose and perspective. It’s rewarding to know that my efforts can make a tangible difference for all CF'ers.
Meeting other families like ours which have been affected by CF and hearing their stories deeply inspired me. It reminds me that behind every statistic is a person, and that fuels my commitment to advocacy and fundraising.
Fast forward 6 years and we have attended many CF walks, climbs, functions, races, all in honor of Ella and the CF community. Having our friends and family, and even my company matching donations helps us feel like we are making a difference, even though sometimes we feel completely helpless. It really does take a village.